It has been almost two weeks since I last wrote here. The chemo ended two weeks ago and I don't think it can be entirely out of my system because red wine still tastes pretty awful. The radiation was completed on the 28th. The last week and a half has been about dealing with the burns and trying to get my digestive system back to comfortable. It is going to take longer than I anticipated. The burn creme is very good and very expensive - 1.5 ounces for $38 - and not covered by insurance.
I enjoyed and was greatly comforted by friends and relatives who stayed with me during the hardest and probably most potentially dangerous parts of this illness. I'm alone most of the time now and it feels right, too. My energy level is still very low - I always think I'm going to have more than I do and I think I'm going to be feeling better than I do. I'm not lonely and company is always within a phone call or email.
I'll see the medical oncologist on Monday and she will schedule a time for me to see the surgeon who did the biopsy. He will assess the size of the tumor. The port for blood draws and which was used for the chemo pump will be coming out. I'll know more about what is next after that appointment which is probably at least a couple of weeks away.
The healing will continue slowly but surely. It is already easier to sit than it was and little by little the perineal area is healing. I'm not taking quite so many pain pills.
This much solitude is new to me and it's ok. I thought I'd have done more reading, more work, watched more movies, and maybe even have done some sorting in the garage! Live and learn!
Betsy
1 comment:
Hi Betsy, It's nice to read your most message and hear the optimism in your voice. I'm glad your tasting wine and hope that's real taste comes soon!
We're all thinking of you here on the East Coast.
With many hugs and thoughts,
Love,
Ed
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